Rarus Health
is a trusted partner
for patient communities
Creates records, collects information, advocates for access
to treatment using an evidence-based approach of patients
If you are the leader
of a patient organization, Rarus Health will help you generate changes for your community
We help you to be visible:
to collect data on the number of patients
with specific diseases, unmet needs and understand
the development of a disease.
With specific numbers backing up your community, your advocacy will be evidence-based!collect data on the number of patients with specific diseases,
unmet needs and understand the development
of a disease.
Does your disease have no specific treatment and are you thinking about how to contribute to the development of medicines?
We will help your community to plan a registry focused on the patient and his family.
It is difficult to find specialists with experience
in rare diseases in one place.
Let’s create a virtual center dedicated
to the management of your disease!
Our digital technology will help connect your community with a multidisciplinary
team of specialists.
Our users say
«Rarus Health has been a true lifeline for our family and the entire Williams Syndrome community. They really heard our problem - chewing difficulties - and made the effort to develop a specialized digital food diary for our children.
This has been an invaluable experience. Not only have they connected us with experienced professionals, but they have also created a virtual clinic that simplifies our daily tasks. Rarus Health has been a trusted partner in our journey.»
Veronika Grigorieva (Israel),
Maria's mother, a kid with Williams syndrome and Head of patient community
If you would like advice on creating a registry for patient communities, please leave your contacts
By clicking the button, you agree to the processing of personal data and agree to the privacy policy.
