Digital Care Center
For patients with rare or infrequent diseases and their families
We help families to find
the quickest way to
of diagnosis and treatment, if necessary
Children with disabilities
Children with psychomotor developmental problems or uncertain diagnoses
Children with rare genetic diseases
How many times?
- Have you had to tell the medical history of your daughter/son?
- Have you had to do expensive tests and have not been able to get a clear diagnosis?
- Have you felt lost/missing?
- Have you found it difficult to balance your work life and your life as a caregiver?
- Didn't you know what was normal (and what wasn't)?
We share your pain, give you expert guidance and accompany you in everything you need
Planes
Plan Gratuito
- Historial Médico Personal Electrónico
- Compartir tu historial con doctores
Permítanos ser su socio
Plan Intermedio
- Todo lo incluido en el plan gratuito, más:
- Asesor de Cuidados Personal dedicado
- Plan 360 de cuidados personalizado
- Apoyo constante y respuestas a tus preguntas
- Te ayudamos a obtener beneficios sociales
- Información de ensayos clínicos
- Obtener Información clave para tus doctores
por 3 meses
Plan Completo
- Todo lo incluido en el Plan Intermedio, más:
- Acceso a nuestro equipo de profesionales interdisciplinario
- Evaluación y comunicación constante
- Acceso a consultas online
por 3 meses
How it works
Care Manager
The heart of our caring and loving care
Your personal care advisor:
- Will analyze all your medical information and solve your queries,
- Will design a care plan with the steps to follow in the next 3 months,
- Will accompany you digitally answering your questions during this period!
Digital Care Center
- The Personal Care Manager who will perform an initial assessment and generate a work plan with an internal team of Rarus Health professionals specific to your case.
- The personalized health team is formed according to the needs of your child and your family with professions of relevant disciplines such as: psychology, nursing, speech therapy, occupational therapy, kinesiology, among others.
- Interdisciplinary assessment, diagnosis and treatment: Professionals share their analysis to make better decisions and thus improve treatment efficacy.
- Interdisciplinary consensus: When in doubt, the team meets and gives you a consensual suggestion to improve your confidence and peace of mind.
Our partner
We have the support of
Our expert team
Elmira Safarova
PhD in Molecular Biology and Pharmacology, Founder and scientific leader of Rarus Health SpA, More than 25 years of experience in scientific drug development, Visiting Professor at Moscow State University, Russia, Member of International Rare Disease Research Consortium.
Fernanda Perez
Leader of the medical area for LATAM, Professional nurse with specialization in neuromuscular pathologies, pain and clinical genetics, University Professor in several Health Schools, Leader of the academic area of FECHER.
We are working together with
Francya Castro
Speech therapist and MS in Autism Spectrum Disorders
Experiencia principal: Espectro Autista.
Scientific interests: Neuroscience, autism spectrum, apraxia of speech.
Personal interests: Social networking, writing, public speaking, empowering families.
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She will help them with her specialization in the area of autism spectrum and language delay.
Francya inspires our team to make a positive impact on patients, their families and the community.
Pavel Zhbankov
Occupational Therapist and MS in Ergonomics
Pavel nos inspira por su dedicación a la comunidad de pacientes con Síndrome de Rett.
Les ayudará gracias a su experiencia atendiendo con pacientes con enfermedades raras su especialización en ergonomía.
Main Experience: People with Rett Syndrome, Autism, Cerebral Palsy and Deficit
of Care and their families and communities.
Scientific interests: Motivation in occupational choices and the influence on routines
of family life of people with health conditions.
Personal interests: Spending time with family, practicing Judo and nature.
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Our users say
“I am very grateful to have acquired the knowledge from the Rare Disease courses for health specialists, as it allowed me to suspect that my son had a disease. I went to the right doctor and he confirmed the diagnosis of Hypermobile Ehler-Danlos Syndrome (HDEHS).”
Rarus Health is a trusted partner in our journey and a true lifesaver for our family. They really listened to our problem - chewing difficulties - and made the effort to develop a specialized digital food diary for our children with Williams syndrome. Not only did they connect us with experienced professionals, but they also created a virtual clinic that simplifies our daily tasks.
Thanks to Rarus Health I now know more about my son Jorge's disease (ring chromosomopathy 22, the only case in Chile). Fernanda and Elmira have been very close, warm and empathetic and they guided me by elaborating an action plan that has helped me a lot to know what steps to take with Jorge.
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