Blind spot
1
After patient identification
Screening finds the person. Rarus Health guides them to the next clinical step.
Keep care moving between visits
Rarus Health catches what happens between visits and turns it into action before the patient is lost.
What does Rarus Health do?
Rarus Health is an international company based in Santiago, Chile. It turns patient messages, documents and check-ins into care signals: what happened, what may need to happen next, what blocked it and who needs to know.
A care signal turns what a family experiences into something a care team or a sponsor can act on.
Who buys it
Pharma and biotech companies
CROs
Clinics and hospitals
The model was proved first in rare disease care.
The family
Where it works
On WhatsApp, the channel families already use. There is no app to download.
Rarus Health
Who does the work
AI structures routine signals.
A Care Manager handles what needs judgment.
The care team
Clinical limit
Rarus Health does not deliver care, diagnose or prescribe. The care team makes clinical decisions.
Start where the journey breaks.
What the medical record sees
What Rarus Health catches
Patient identified
Diagnosis
Blind spot
2
After diagnosis
Referrals, tests and documents that families manage alone. Rarus Health keeps the context.
Treatment starts
Blind spot
3
Between clinical visits
Treatment, access and daily life change before the next visit. Rarus Health flags what changed.
Next visit
You invested in patient engagement. Then patients disappeared.
Patients enter programs, start treatment, or leave the clinic with a care plan. But what happens next is often invisible, until something goes wrong. Rarus Health keeps patients reachable between those steps, and shows your team where they get stuck.
Pharma & CROs
You identified the patients. Then they disappear.
Rarus Health is not another patient support program. It keeps patients reachable from diagnosis to sustained treatment.
- Launch teams: fewer patients lost before sustained treatment.
- Medical Affairs and HEOR: insight from daily life, which hospital records do not hold.
- Market Access: aggregated insight on access barriers.
- Clinical operations and CROs: pre-feasibility and trial retention.
Clinics & centers of excellence
The consultation ends. The next step still has to happen.
Rarus Health is not an ERP module or a dashboard your staff has to run. It works in the clinic's name.
- Follow-up: appointments confirmed, results chased, changes noticed.
- Messages: a channel between consultations, not the doctor's personal WhatsApp.
- Focus: your clinical team receives only what needs a clinician.
Are you a patient or a family member looking for support? Our partner patient organizations are the best place to start. Find a patient organization
How it works
How does Rarus Health work?
Patients join Rarus Health through a trusted invitation. Continuity then follows meaningful events in their care journey, not a stream of generic messages.
A follow-up check-in after a scheduled appointment. Sample conversation; the names are fictional.
- Step 1
An invitation from someone they trust
A physician, nurse or patient organization shares a QR code or link.
- Step 2
A conversation that understands their situation
The family joins on WhatsApp, receives a clear explanation of the service and gives the applicable consent.
- Step 3
Support when the journey needs to move
Relevant events and barriers inform the next step, with a Care Manager involved when appropriate.
How does Rarus Health protect patients and their information?
Agreed up front
Every participant gives informed consent, with separate consent for each use. Partner visibility and safety boundaries are set before each deployment.
The person decides
Care Managers act with the person's consent and never decide for the person.
Aggregated and anonymized
Companies receive aggregated, anonymized insight, never identifiable patient information.
Frequently asked questions
What does Rarus Health do?
Rarus Health turns patient messages, documents and check-ins into care signals for people with rare and other complex, long-term conditions. Each signal shows what happened, what may need to happen next, what blocked it and who needs to know. Care Managers act on the signals over WhatsApp. Pharma and biotech companies, CROs, clinics and hospitals use the service to keep patients from getting lost.
Who buys Rarus Health?
Pharma and biotech teams buy Rarus Health to keep identified patients on the pathway: brand and launch teams, Medical Affairs, Market Access and clinical operations. CROs use it for patient-focused feasibility and participant support. Hospitals and clinics use it to follow patients between visits without adding staff.
Is Rarus Health a patient app, and does AI replace the Care Manager?
No. Patients and families do not download new software. They use WhatsApp, the channel they already use. Rarus Health uses AI for routine work, such as scheduled check-ins and reading the documents families send. A Care Manager handles every conversation that needs a person. The care team makes clinical decisions.
Which countries does Rarus Health work in?
Rarus Health is based in Santiago, Chile. Rarus Health works with patient organizations and families in Chile and Colombia. Work with healthcare providers in Brazil is in development. Health systems differ between these countries, so Rarus Health sets up each deployment for the country's own payers, institutions and rules.
Which conditions does Rarus Health cover?
Rarus Health began with neuromuscular and metabolic rare diseases, which remain its proof environment. Rarus Health now applies the same care continuity model to other complex, long-term conditions. The model does not depend on one disease. Disease-specific content is added on top of the same service for each deployment.
How does Rarus Health relate to real-world evidence platforms in the United States?
Most United States platforms build evidence by retrieving electronic medical records. Most of Latin America has no shared electronic record, and many families keep their history on paper. Rarus Health complements record-based platforms: it captures what happens outside the medical record, such as why appointments are missed, where patients leave the pathway and the caregiver’s workload. A human Care Manager, not an automated agent, stays in the conversation.
Talk to Rarus Health
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