Power Your Rare Disease Strategy with a Patient-Driven Digital Platform

Digital-first patient engagement, research, and real-world evidence across LATAM

Rarus Health is a healthtech startup building the future of rare disease care—patient by patient, data by data. Our digital care platform combines real-world data, patient-centered tools, and trusted community partnerships to help CROs, pharmaceutical and biotech companies achieve real progress in access, equity, and impact.

What Rarus Health Delivers

Real World Evidence That Speaks to Policymakers

We help you move beyond emotion-based access conversations by delivering pharmacoeconomic reports and localized real-world data dashboardsthat matter to public health institutions.

“How much money does the health system lose by not treating this patient?”

We give you data-backed answers, not just anecdotes.

Scalable, Culturally Adapted Patient Support Programs

We co-create plain-language care plans delivered by nurses and digital tools tailored to families with basic health literacy —transforming complexity into actionable next steps.

«My kid has the diagnosis—now what»

Our Care Manager system becomes the timely guide that patients and families lack.

Early Access and Referral Networks with Nurses & First-Line HCPs

We empower frontline healthcare workers with referral tools, structured care pathways, and specialized education—helping you reach outside capital cities and into real communities.

“I collect all local doctors outside Lima who want to help. They just need support.”

We build that support.

Case Study: Proyecto REALES

First Latin American Registry for Neuromuscular Diseases

Rarus Health is leading Proyecto REALES, the first structured effort to generate real-world data directly from patients and caregivers affected by neuromuscular diseases across LATAM.