Don't let the rare disease take your time
We are here for you; we support you by coordinating specialists, looking for new treatment options and care based on diagnostic and individual needs
Have you received your genetic test results and don't understand the meaning of all the words?
Digital Diagnostic Icon Are you looking for clear information about medications and the clinical trials related to their diagnosis?
Do you have questions about your disease? We are ready to answer them with information backed by science and international best practices.
All these questions and more! Your personal Care Manager can answer
Your personal care advisor:
- Analyze all your medical information and answer your questions
- Design a care plan with the steps to follow in the next 3 months
- Will accompany you digitally and answer your questions during this period!
How it works
Preparation for the consultation
You must fill in all the necessary information about the patient (you or your child) that you wish to share with the personal consultant:
- Upload medical documents
- Fill in two questionnaires regarding pregnancy and infancy (if the patient is a child)
- Mark the questions of interest to you and/or enter your own questions
Submit a request
Use the option Share documents and choose one of our personal advisors (we will show you the options).
Here is our duty!
Within 5 business days, the Care Manager will focus on your case to:
- Study all your medical information
- Review national and international evidence related to your diagnosis; we will find out international reference centers, clinical trials, patient associations, etc. & deliver a complete report and start working together.
- We will help you communicate with these reference centers and advance the best diagnostic and/or treatment options.
The personal service advisor will contact you via WhatsApp to:
- Resolve doubts and queries
- Schedule a 60-minute meeting via Zoom
- Coordinate the payment prior attention
Now we will meet face-to-face!
Once payment is made we will arrange a consultation via Zoom (60 minutes), we will discuss:
- All our findings and information about your disease in general
- Answers of all your questions and doubts
- We will prepare together the care plan for the next 3 months
Care plan
The plan will be available on the platform 2 working days after the Zoom session on the Rarus Platform.
Your case manager will be available for three months via WhatsApp to solve doubts during the next 3 months!
Our personal care managers
Elmira Safarova
Elmira holds a PhD in Molecular Biology and pharmacology from the University of Molecular Genetics Institute. Our founder and scientific leader, with over 25 years of experience in scientific technology development, will provide you with detailed information on international best practices and clinical trials currently seeking patients. Language of consultation:
English (preferably)
Spanish
Russian
$20.000 CLP / per consultation
Fernanda Perez
Fernanda is a Nurse Practitioner with specialization in neuromuscular pathologies, pain and clinical genetics. Leader of the medical area for LATAM in Rarus Health. She is also a university professor in several health schools and leader of the academic area of the Chilean Federation of Rare Diseases (FECHER). She is also a patient with a rare disease. She has the ability to explain genetic testing in a simple way, her large network in Latin America and the EU will help you find the right specialists for you. Language: Spanish (native) English.
$20.000 CLP / per consultation
English 
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