Rarus Health
is a trusted partner
for the communities of patients
Orientation for community leaders, create registries, collects information, advocates for access to treatment using an evidence-based approach for patients.
If you are the leader
an organization of patients, Rarus Health will help you to generate changes to your community
We help your community to be visible
We collect data from patients in your community and transform it into concrete numbers that support your community.
Your advocacy will be based on real evidence and facilitate evidence-based public policy development.
Does your disease has no specific treatment and are thinking about how to contribute to the development of drugs?
We will help your community plan for a record focused on the patient and their family.
It is difficult to find specialists with experience
in rare diseases in a single place.
We are a virtual center dedicated to your disease management.
Our digital technology will help connect your community with a multidisciplinary team of specialists.
What our users say
«Rarus Health has been a real lifesaver for our family and the entire Williams syndrome community. They really listened to our problem - chewing difficulties - and made the effort to develop a specialized digital food diary for our children. It has been an invaluable experience. Not only have they connected us with experienced professionals, but they have also created a virtual clinic that simplifies our daily tasks. Rarus Health has been a trusted partner in our journey.»
Veronika Grigorieva (Israel),
madre de María, niña con síndrome de Williams y responsable de la comunidad de pacientes.
If you want advice on the creation of a registry for communities of patients, leave us your contacts
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