{"id":379,"date":"2023-04-25T20:52:00","date_gmt":"2023-04-25T20:52:00","guid":{"rendered":"https:\/\/rarus.health\/?page_id=379"},"modified":"2024-11-19T14:29:58","modified_gmt":"2024-11-19T14:29:58","slug":"noticias","status":"publish","type":"page","link":"https:\/\/rarus.health\/en\/noticias\/","title":{"rendered":"News"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"379\" class=\"elementor elementor-379\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-c49282c elementor-section-height-min-height elementor-section-stretched elementor-section-boxed elementor-section-height-default elementor-section-items-middle\" data-id=\"c49282c\" data-element_type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;,&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-30ec779\" data-id=\"30ec779\" data-element_type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-4ea4768\" data-id=\"4ea4768\" data-element_type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-82838f7 elementor-section-content-top elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"82838f7\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-3971bc5 raven-column-flex-center raven-column-flex-horizontal\" data-id=\"3971bc5\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-8dbf0a6 elementor-widget-tablet_extra__width-initial elementor-widget elementor-widget-heading\" data-id=\"8dbf0a6\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Our latest news<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-f4b71d0 elementor-widget elementor-widget-text-editor\" data-id=\"f4b71d0\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>News \u00b7 educational supplies \u00b7 Notebooks-study \u00b7 And more<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-7debc74\" data-id=\"7debc74\" data-element_type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-a9c36e3 elementor-section-stretched elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"a9c36e3\" data-element_type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-7f49bf7\" data-id=\"7f49bf7\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7a23a87 raven-button-align-left elementor-widget elementor-widget-raven-posts\" data-id=\"7a23a87\" data-element_type=\"widget\" data-settings=\"{&quot;classic_show_pagination&quot;:&quot;yes&quot;,&quot;classic_pagination_type&quot;:&quot;load_more&quot;,&quot;_skin&quot;:&quot;classic&quot;,&quot;classic_layout&quot;:&quot;grid&quot;,&quot;classic_columns&quot;:&quot;3&quot;,&quot;classic_columns_tablet&quot;:&quot;2&quot;,&quot;classic_columns_mobile&quot;:&quot;1&quot;,&quot;query_posts_per_page&quot;:6,&quot;query_offset&quot;:0}\" data-widget_type=\"raven-posts.classic\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"raven-posts raven-grid raven-grid-3 raven-grid-mobile-1 raven-grid-mobile_extra- raven-grid-tablet-2 raven-grid-tablet_extra- raven-grid-laptop-\" data-post-id=\"379\" data-archive-query=\"\" data-lang=\"\">\n\t\t\t\t<div class=\"raven-grid-item raven-post-item post-3824 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-enfermedad-de-pompe tag-fundacion-pompe-club-internacional tag-tarjeta-medica-de-emergencia\">\n\t\t\t<div class=\"raven-post elementor-animation-grow\">\n\t\t\t\t\t\t<div class=\"raven-post-image-wrap\">\n\t\t\t<a class=\"raven-post-image raven-image-fit\" href=\"https:\/\/rarus.health\/en\/2026\/02\/04\/herramientas-digitales-pompe-latam\/\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1024\" height=\"681\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/02\/Portada-herramientas-digitales-pompe-1024x681.webp\" class=\"attachment-large size-large wp-image-3826\" alt=\"Captura de pantalla del Zoom con Mariela, Brayhan y Fernando sonriendo. El texto dice C\u00f3mo obtener estas hrramientas digitales y se\u00f1ala el link app.rarus.health.\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/02\/Portada-herramientas-digitales-pompe-1024x681.webp 1024w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/02\/Portada-herramientas-digitales-pompe-300x200.webp 300w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/02\/Portada-herramientas-digitales-pompe-768x511.webp 768w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/02\/Portada-herramientas-digitales-pompe-18x12.webp 18w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/02\/Portada-herramientas-digitales-pompe-200x133.webp 200w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/02\/Portada-herramientas-digitales-pompe.webp 1440w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/> <span class=\"raven-post-image-overlay\"><\/span><\/a>\t\t<\/div>\n\t\t\t\t\t\t<div class=\"raven-post-content\">\n\t\t\t\t\t<h2 class=\"raven-post-title\"><a class=\"raven-post-title-link\" href=\"https:\/\/rarus.health\/en\/2026\/02\/04\/herramientas-digitales-pompe-latam\/\">Herramientas Digitales y Enfermedades Raras: As\u00ed transformamos el cuidado de la Comunidad Pompe junto a sus l\u00edderes<\/a><\/h2>\t\t<div class=\"raven-post-meta\"><a class=\"raven-post-meta-item raven-post-date\" href=\"https:\/\/rarus.health\/en\/2026\/02\/\" rel=\"bookmark\">February 4, 2026<\/a><\/div>\n\t\t<div class=\"raven-post-excerpt\">El pasado jueves 29 de enero vivimos un hito emocionante en Rarus Health. En alianza con la Fundaci\u00f3n Pompe Club Internacional, llevamos a cabo el webinar \u00abDomina tus Herramientas Digitales\u00bb,<\/div>\t\t<div class=\"raven-post-read-more\">\n\t\t\t<a class=\"raven-post-button\" href=\"https:\/\/rarus.health\/en\/2026\/02\/04\/herramientas-digitales-pompe-latam\/\"><span class=\"raven-post-button-text\">Leer m\u00e1s &gt;<\/span><\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"raven-grid-item raven-post-item post-3659 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-apoyo-a-pacientes tag-chile tag-comunidad-de-pacientes tag-enfermedades-raras tag-expoinclusion-2025 tag-inclusion tag-rarus-health tag-salud-digital tag-tecnologia-en-salud\">\n\t\t\t<div class=\"raven-post elementor-animation-grow\">\n\t\t\t\t\t\t<div class=\"raven-post-image-wrap\">\n\t\t\t<a class=\"raven-post-image raven-image-fit\" href=\"https:\/\/rarus.health\/en\/2025\/10\/21\/rarus-health-en-expoinclusion-2025\/\"><img decoding=\"async\" width=\"1024\" height=\"681\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2025\/10\/Rarus-Health-en-Expoinclusion-2025-1024x681.png\" class=\"attachment-large size-large wp-image-3666\" alt=\"\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2025\/10\/Rarus-Health-en-Expoinclusion-2025-1024x681.png 1024w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/10\/Rarus-Health-en-Expoinclusion-2025-300x200.png 300w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/10\/Rarus-Health-en-Expoinclusion-2025-768x511.png 768w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/10\/Rarus-Health-en-Expoinclusion-2025-18x12.png 18w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/10\/Rarus-Health-en-Expoinclusion-2025-200x133.png 200w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/10\/Rarus-Health-en-Expoinclusion-2025.png 1440w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/> <span class=\"raven-post-image-overlay\"><\/span><\/a>\t\t<\/div>\n\t\t\t\t\t\t<div class=\"raven-post-content\">\n\t\t\t\t\t<h2 class=\"raven-post-title\"><a class=\"raven-post-title-link\" href=\"https:\/\/rarus.health\/en\/2025\/10\/21\/rarus-health-en-expoinclusion-2025\/\">Rarus Health en Expoinclusi\u00f3n 2025: Conectando con la Comunidad y Presentando Herramientas Clave<\/a><\/h2>\t\t<div class=\"raven-post-meta\"><a class=\"raven-post-meta-item raven-post-date\" href=\"https:\/\/rarus.health\/en\/2025\/10\/\" rel=\"bookmark\">October 21, 2025<\/a><\/div>\n\t\t<div class=\"raven-post-excerpt\">Rarus Health particip\u00f3 en Expoinclusi\u00f3n 2025, conectando con la comunidad de enfermedades raras y presentando herramientas gratuitas como la tarjeta de emergencia y la historia m\u00e9dica digital.<\/div>\t\t<div class=\"raven-post-read-more\">\n\t\t\t<a class=\"raven-post-button\" href=\"https:\/\/rarus.health\/en\/2025\/10\/21\/rarus-health-en-expoinclusion-2025\/\"><span class=\"raven-post-button-text\">Leer m\u00e1s &gt;<\/span><\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"raven-grid-item raven-post-item post-3634 post type-post status-publish format-standard has-post-thumbnail hentry category-blog tag-apoyo-visual tag-dravet tag-horario-visual\">\n\t\t\t<div class=\"raven-post elementor-animation-grow\">\n\t\t\t\t\t\t<div class=\"raven-post-image-wrap\">\n\t\t\t<a class=\"raven-post-image raven-image-fit\" href=\"https:\/\/rarus.health\/en\/2025\/07\/04\/apoyos-visual-dravet\/\"><img decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2025\/07\/Header-Blog-Post-Rarus-1024x576.png\" class=\"attachment-large size-large wp-image-3635\" alt=\"Apoyos visuales para ni\u00f1os con s\u00edndrome de Dravet: gu\u00eda paso a paso\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2025\/07\/Header-Blog-Post-Rarus-1024x576.png 1024w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/07\/Header-Blog-Post-Rarus-300x169.png 300w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/07\/Header-Blog-Post-Rarus-768x432.png 768w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/07\/Header-Blog-Post-Rarus-1536x864.png 1536w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/07\/Header-Blog-Post-Rarus-2048x1152.png 2048w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/07\/Header-Blog-Post-Rarus-18x10.png 18w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/07\/Header-Blog-Post-Rarus-200x113.png 200w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/> <span class=\"raven-post-image-overlay\"><\/span><\/a>\t\t<\/div>\n\t\t\t\t\t\t<div class=\"raven-post-content\">\n\t\t\t\t\t<h2 class=\"raven-post-title\"><a class=\"raven-post-title-link\" href=\"https:\/\/rarus.health\/en\/2025\/07\/04\/apoyos-visual-dravet\/\">Apoyos visuales para ni\u00f1os con s\u00edndrome de Dravet: gu\u00eda paso a paso<\/a><\/h2>\t\t<div class=\"raven-post-meta\"><a class=\"raven-post-meta-item raven-post-date\" href=\"https:\/\/rarus.health\/en\/2025\/07\/\" rel=\"bookmark\">July 4, 2025<\/a><\/div>\n\t\t<div class=\"raven-post-excerpt\">Aprende a crear apoyos visuales que reducen ansiedad y fomentan la autonom\u00eda de tu hijo con s\u00edndrome de Dravet. Recursos gratuitos y gu\u00eda pr\u00e1ctica.<\/div>\t\t<div class=\"raven-post-read-more\">\n\t\t\t<a class=\"raven-post-button\" href=\"https:\/\/rarus.health\/en\/2025\/07\/04\/apoyos-visual-dravet\/\"><span class=\"raven-post-button-text\">Leer m\u00e1s &gt;<\/span><\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"raven-grid-item raven-post-item post-3629 post type-post status-publish format-standard has-post-thumbnail hentry category-blog tag-ai-in-healthcare tag-data-sovereignty tag-latin-america-clinical-trials tag-rare-diem-2025 tag-rare-diseases\">\n\t\t\t<div class=\"raven-post elementor-animation-grow\">\n\t\t\t\t\t\t<div class=\"raven-post-image-wrap\">\n\t\t\t<a class=\"raven-post-image raven-image-fit\" href=\"https:\/\/rarus.health\/en\/2025\/06\/17\/rare-diem-virtual-summit-2025-latin-americas-rare-disease-clinical-trials-advantage\/\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2025\/06\/RARE-DIEM-Rarus-Health-virtual-summit-2025-Data-Sovereignty-AI-in-Latin-America-Clinical-Trials-Elmira-Safarova-1-1024x576.png\" class=\"attachment-large size-large wp-image-3627\" alt=\"RARE DIEM Virtual Summit 2025 Panelists. Elmira Safarova among them. Title reads: Data Sovereignty &amp; AI for Rare-Disease Trials in Latin America.\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2025\/06\/RARE-DIEM-Rarus-Health-virtual-summit-2025-Data-Sovereignty-AI-in-Latin-America-Clinical-Trials-Elmira-Safarova-1-1024x576.png 1024w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/06\/RARE-DIEM-Rarus-Health-virtual-summit-2025-Data-Sovereignty-AI-in-Latin-America-Clinical-Trials-Elmira-Safarova-1-300x169.png 300w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/06\/RARE-DIEM-Rarus-Health-virtual-summit-2025-Data-Sovereignty-AI-in-Latin-America-Clinical-Trials-Elmira-Safarova-1-768x432.png 768w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/06\/RARE-DIEM-Rarus-Health-virtual-summit-2025-Data-Sovereignty-AI-in-Latin-America-Clinical-Trials-Elmira-Safarova-1-1536x864.png 1536w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/06\/RARE-DIEM-Rarus-Health-virtual-summit-2025-Data-Sovereignty-AI-in-Latin-America-Clinical-Trials-Elmira-Safarova-1-18x10.png 18w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/06\/RARE-DIEM-Rarus-Health-virtual-summit-2025-Data-Sovereignty-AI-in-Latin-America-Clinical-Trials-Elmira-Safarova-1-200x113.png 200w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/06\/RARE-DIEM-Rarus-Health-virtual-summit-2025-Data-Sovereignty-AI-in-Latin-America-Clinical-Trials-Elmira-Safarova-1.png 1680w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/> <span class=\"raven-post-image-overlay\"><\/span><\/a>\t\t<\/div>\n\t\t\t\t\t\t<div class=\"raven-post-content\">\n\t\t\t\t\t<h2 class=\"raven-post-title\"><a class=\"raven-post-title-link\" href=\"https:\/\/rarus.health\/en\/2025\/06\/17\/rare-diem-virtual-summit-2025-latin-americas-rare-disease-clinical-trials-advantage\/\">Rare DIEM Virtual Summit 2025: Latin America\u2019s Rare-Disease Clinical Trials Advantage<\/a><\/h2>\t\t<div class=\"raven-post-meta\"><a class=\"raven-post-meta-item raven-post-date\" href=\"https:\/\/rarus.health\/en\/2025\/06\/\" rel=\"bookmark\">June 17, 2025<\/a><\/div>\n\t\t<div class=\"raven-post-excerpt\">Discover key takeaways from Rare DIEM 2025 and how Rarus Health\u2019s Proyecto REALES accelerates patient-centered rare-disease trials in Latin America.<\/div>\t\t<div class=\"raven-post-read-more\">\n\t\t\t<a class=\"raven-post-button\" href=\"https:\/\/rarus.health\/en\/2025\/06\/17\/rare-diem-virtual-summit-2025-latin-americas-rare-disease-clinical-trials-advantage\/\"><span class=\"raven-post-button-text\">Leer m\u00e1s &gt;<\/span><\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"raven-grid-item raven-post-item post-3604 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-becker tag-cuidadoras tag-cuidadores tag-distrofia-muscular tag-dmd tag-duchenne tag-enfermedad-neuromuscular tag-enm tag-reales tag-saluta\">\n\t\t\t<div class=\"raven-post elementor-animation-grow\">\n\t\t\t\t\t\t<div class=\"raven-post-image-wrap\">\n\t\t\t<a class=\"raven-post-image raven-image-fit\" href=\"https:\/\/rarus.health\/en\/2025\/04\/30\/cuidando-a-quien-cuida-autocuidado-para-cuidadoras-y-cuidadores-de-personas-con-enfermedades-neuromusculares\/\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2025\/04\/Cuidando-a-quien-cuida-masterclass-autocuidado-para-cuidadoras-y-cuidadores-1024x576.png\" class=\"attachment-large size-large wp-image-3605\" alt=\"Masterclass sobre estrategias de autocuidado para cuidadoras y cuidadores de pacientes con enfermedades neuromusculares S\u00e1bado 10 de Mayo, 15:00 (Colombia) \/ 16:00 (Chile) Online v\u00eda ZOOM GRATIS para participantes del Proyecto REALES\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2025\/04\/Cuidando-a-quien-cuida-masterclass-autocuidado-para-cuidadoras-y-cuidadores-1024x576.png 1024w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/04\/Cuidando-a-quien-cuida-masterclass-autocuidado-para-cuidadoras-y-cuidadores-300x169.png 300w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/04\/Cuidando-a-quien-cuida-masterclass-autocuidado-para-cuidadoras-y-cuidadores-768x432.png 768w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/04\/Cuidando-a-quien-cuida-masterclass-autocuidado-para-cuidadoras-y-cuidadores-18x10.png 18w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/04\/Cuidando-a-quien-cuida-masterclass-autocuidado-para-cuidadoras-y-cuidadores-200x113.png 200w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/04\/Cuidando-a-quien-cuida-masterclass-autocuidado-para-cuidadoras-y-cuidadores.png 1536w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/> <span class=\"raven-post-image-overlay\"><\/span><\/a>\t\t<\/div>\n\t\t\t\t\t\t<div class=\"raven-post-content\">\n\t\t\t\t\t<h2 class=\"raven-post-title\"><a class=\"raven-post-title-link\" href=\"https:\/\/rarus.health\/en\/2025\/04\/30\/cuidando-a-quien-cuida-autocuidado-para-cuidadoras-y-cuidadores-de-personas-con-enfermedades-neuromusculares\/\">Cuidando a Quien Cuida: Autocuidado para Cuidadoras y Cuidadores de personas con Enfermedades Neuromusculares<\/a><\/h2>\t\t<div class=\"raven-post-meta\"><a class=\"raven-post-meta-item raven-post-date\" href=\"https:\/\/rarus.health\/en\/2025\/04\/\" rel=\"bookmark\">April 30, 2025<\/a><\/div>\n\t\t<div class=\"raven-post-excerpt\">En esta masterclass recibir\u00e1s herramientas basadas en evidencia cient\u00edfica y estrategias pr\u00e1cticas para mejorar tu calidad de vida, de la mano de expertos.<\/div>\t\t<div class=\"raven-post-read-more\">\n\t\t\t<a class=\"raven-post-button\" href=\"https:\/\/rarus.health\/en\/2025\/04\/30\/cuidando-a-quien-cuida-autocuidado-para-cuidadoras-y-cuidadores-de-personas-con-enfermedades-neuromusculares\/\"><span class=\"raven-post-button-text\">Leer m\u00e1s &gt;<\/span><\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"raven-grid-item raven-post-item post-3414 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-alianzas-globales tag-evento tag-irdirc tag-react-congress\">\n\t\t\t<div class=\"raven-post elementor-animation-grow\">\n\t\t\t\t\t\t<div class=\"raven-post-image-wrap\">\n\t\t\t<a class=\"raven-post-image raven-image-fit\" href=\"https:\/\/rarus.health\/en\/2025\/03\/03\/alianzas-globales-en-enfermedades-raras\/\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"579\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2025\/03\/REACT-IRDiRC-brussels-2025-alianzas-globales-en-enfermedades-raras-RARUS-HEALTH-1024x579.png\" class=\"attachment-large size-large wp-image-3415\" alt=\"Imagen promocional del RE(ACT) Congress y la Conferencia IRDiRC 2025 en Bruselas. Muestra a Elmira Safarova, fundadora de Rarus Health, apuntando hacia el evento junto a una estatua de bronce sosteniendo un cartel con el hashtag #RAREVOLUTION, promoviendo alianzas globales en enfermedades raras. Incluye logos de Rarus Health, BLACKSWAN Foundation, IRDiRC y ERDERA, con un llamado a participar en el evento.\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2025\/03\/REACT-IRDiRC-brussels-2025-alianzas-globales-en-enfermedades-raras-RARUS-HEALTH-1024x579.png 1024w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/03\/REACT-IRDiRC-brussels-2025-alianzas-globales-en-enfermedades-raras-RARUS-HEALTH-300x170.png 300w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/03\/REACT-IRDiRC-brussels-2025-alianzas-globales-en-enfermedades-raras-RARUS-HEALTH-768x435.png 768w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/03\/REACT-IRDiRC-brussels-2025-alianzas-globales-en-enfermedades-raras-RARUS-HEALTH-1536x869.png 1536w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/03\/REACT-IRDiRC-brussels-2025-alianzas-globales-en-enfermedades-raras-RARUS-HEALTH-18x10.png 18w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/03\/REACT-IRDiRC-brussels-2025-alianzas-globales-en-enfermedades-raras-RARUS-HEALTH-200x113.png 200w, https:\/\/rarus.health\/wp-content\/uploads\/2025\/03\/REACT-IRDiRC-brussels-2025-alianzas-globales-en-enfermedades-raras-RARUS-HEALTH.png 1792w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/> <span class=\"raven-post-image-overlay\"><\/span><\/a>\t\t<\/div>\n\t\t\t\t\t\t<div class=\"raven-post-content\">\n\t\t\t\t\t<h2 class=\"raven-post-title\"><a class=\"raven-post-title-link\" href=\"https:\/\/rarus.health\/en\/2025\/03\/03\/alianzas-globales-en-enfermedades-raras\/\">Strengthening global partnerships in rare diseases<\/a><\/h2>\t\t<div class=\"raven-post-meta\"><a class=\"raven-post-meta-item raven-post-date\" href=\"https:\/\/rarus.health\/en\/2025\/03\/\" rel=\"bookmark\">March 3, 2025<\/a><\/div>\n\t\t<div class=\"raven-post-excerpt\">En B\u00e9lgica, Elmira Safarova presentar\u00e1 los avances de Rarus Health en el cuidado de enfermedades raras y participar\u00e1 de instancias para fortalecer alianzas globales que impulsen avances cient\u00edficos y pol\u00edticas inclusivas. <\/div>\t\t<div class=\"raven-post-read-more\">\n\t\t\t<a class=\"raven-post-button\" href=\"https:\/\/rarus.health\/en\/2025\/03\/03\/alianzas-globales-en-enfermedades-raras\/\"><span class=\"raven-post-button-text\">Leer m\u00e1s &gt;<\/span><\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"raven-load-more\" data-settings=\"{&quot;maxNumPages&quot;:5}\">\n\t\t\t<a class=\"raven-load-more-button\" href=\"#\"><span class=\"raven-post-button-text\">Load more<\/span><\/a>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4d93529 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"4d93529\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-3ec8564\" data-id=\"3ec8564\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c71610e elementor-widget elementor-widget-html\" data-id=\"c71610e\" data-element_type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<script>\n    function getParameterByName(name) {\n        var match = RegExp('[?&]' + name + '=([^&]*)').exec(window.location.search);\n        return match && decodeURIComponent(match[1].replace(\/\\+\/g, ' '));\n    }\n    window.onload = function() {\n      const ref = getParameterByName('ref')\n      console.log('ref', 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