{"id":3715,"date":"2026-01-20T03:19:15","date_gmt":"2026-01-20T03:19:15","guid":{"rendered":"https:\/\/rarus.health\/?page_id=3715"},"modified":"2026-01-21T13:34:27","modified_gmt":"2026-01-21T13:34:27","slug":"enfermedad-de-pompe","status":"publish","type":"page","link":"https:\/\/rarus.health\/en\/enfermedad-de-pompe\/","title":{"rendered":"Gu\u00eda para la Enfermedad de Pompe en Latinoam\u00e9rica"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"3715\" class=\"elementor elementor-3715\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-7f0ae3c elementor-section-height-min-height elementor-section-boxed elementor-section-height-default elementor-section-items-middle\" data-id=\"7f0ae3c\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-27d81bb\" data-id=\"27d81bb\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-04b30d6 elementor-widget-tablet_extra__width-initial elementor-widget elementor-widget-heading\" data-id=\"04b30d6\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Tu Br\u00fajula en el Viaje con Pompe: \nCiencia, Comunidad e Infraestructura<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6935052 elementor-widget elementor-widget-text-editor\" data-id=\"6935052\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Unimos la tecnolog\u00eda de <strong>Rarus Health<\/strong> con la experiencia vivida de la <strong>Fundaci\u00f3n Pompe Club Internacional<\/strong> para romper el aislamiento y ofrecerte herramientas reales de cuidado<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-4d474e4 elementor-section-content-middle elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"4d474e4\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-873cb5e\" data-id=\"873cb5e\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-cec5ad1 elementor-mobile-align-center elementor-align-center elementor-widget-tablet_extra__width-initial elementor-widget__width-initial elementor-widget elementor-widget-button\" data-id=\"cec5ad1\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-lg\" href=\"#form-guia\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Descarga la Gu\u00eda de Referencia Para la Enfermedad de Pompe aqu\u00ed<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-4c9ac04\" data-id=\"4c9ac04\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6fb3738 elementor-widget__width-initial elementor-widget-mobile__width-inherit elementor-widget elementor-widget-image\" data-id=\"6fb3738\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"http:\/\/clubpompe.org\/\" target=\"_blank\" rel=\"noopener\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"855\" height=\"1024\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Logo-Pompe-Club-855x1024.webp\" class=\"attachment-large size-large wp-image-3716\" alt=\"Logo de Fundaci\u00f3n Pompe Club Internacional\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Logo-Pompe-Club-855x1024.webp 855w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Logo-Pompe-Club-250x300.webp 250w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Logo-Pompe-Club-768x920.webp 768w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Logo-Pompe-Club-10x12.webp 10w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Logo-Pompe-Club-200x240.webp 200w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Logo-Pompe-Club.webp 1278w\" sizes=\"(max-width: 855px) 100vw, 855px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-0670c12 animated-slow elementor-section-boxed elementor-section-height-default elementor-section-height-default elementor-invisible\" data-id=\"0670c12\" data-element_type=\"section\" data-settings=\"{&quot;animation&quot;:&quot;fadeIn&quot;,&quot;animation_delay&quot;:100}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-extended\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-4402f3a\" data-id=\"4402f3a\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-8d1afe1 elementor-widget elementor-widget-text-editor\" data-id=\"8d1afe1\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h2><strong>Infraestructura para la Comunidad<\/strong><\/h2><h2><strong>Impulsada por la Comunidad<\/strong><\/h2>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-70e24a4 elementor-section-height-min-height elementor-section-stretched animated-slow elementor-section-boxed elementor-section-height-default elementor-section-items-middle elementor-invisible\" data-id=\"70e24a4\" data-element_type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;,&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;fadeIn&quot;,&quot;animation_delay&quot;:300}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-2ae10fa\" data-id=\"2ae10fa\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-68c6646 e-transform elementor-widget elementor-widget-image\" data-id=\"68c6646\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;none&quot;,&quot;_transform_scale_effect_hover&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1.1,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_laptop&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_tablet_extra&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_tablet&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_mobile_extra&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_mobile&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]}}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"642\" height=\"720\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Fundacion-Pompe-Club-Internacional.webp\" class=\"attachment-full size-full wp-image-3717\" alt=\"Brayhan Gonz\u00e1lez y Fernando Rodr\u00edguez, l\u00edderes de la Fundaci\u00f3n Pompe Club Internacional, posan sonrientes junto al miembro de la comunidad Miller. Fernando est\u00e1 de pie en el centro, apoyando sus manos sobre los hombros de Brayhan y Miller, quienes est\u00e1n sentados en sus sillas de ruedas haciendo un gesto de aprobaci\u00f3n con los pulgares arriba.\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Fundacion-Pompe-Club-Internacional.webp 642w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Fundacion-Pompe-Club-Internacional-268x300.webp 268w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Fundacion-Pompe-Club-Internacional-11x12.webp 11w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Fundacion-Pompe-Club-Internacional-200x224.webp 200w\" sizes=\"(max-width: 642px) 100vw, 642px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-93f5eda\" data-id=\"93f5eda\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-8f983ce elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"8f983ce\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-7cd760c\" data-id=\"7cd760c\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a1dd9aa elementor-widget-tablet_extra__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"a1dd9aa\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>La enfermedad de Pompe presenta desaf\u00edos que ninguna familia deber\u00eda enfrentar sola.<\/p><p><span class=\"citation-51\">Identificamos una \u00abTr\u00edada del Aislamiento\u00bb que afecta a nuestra regi\u00f3n: <strong>barreras f\u00edsicas, falta de informaci\u00f3n confiable y carga emocional.<\/strong><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-20e6ac7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"20e6ac7\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-327d7d1\" data-id=\"327d7d1\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1e29741 elementor-widget-tablet_extra__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"1e29741\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Para enfrentarlo, hemos formalizado una alianza estrat\u00e9gica<\/p><ul><li><strong><a href=\"https:\/\/www.clubpompe.org\/\" target=\"_blank\" rel=\"noopener\"><span style=\"text-decoration: underline;\">Fundaci\u00f3n Pompe Club Internacional<\/span><\/a>:<\/strong> Aporta el coraz\u00f3n, la identidad y la estrategia de defensa del paciente.<\/li><li><strong>Rarus Health:<\/strong> Aporta la infraestructura tecnol\u00f3gica, la navegaci\u00f3n especializada y la capacidad de generar evidencia del mundo real.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-c927df0 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"c927df0\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-a94b9c0\" data-id=\"a94b9c0\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f907013 elementor-widget-tablet_extra__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"f907013\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span data-path-to-node=\"16,0\">Somos el puente que conecta tus necesidades diarias con soluciones accesibles.<\/span><\/p><p><strong><span class=\"citation-48\">Juntos, transformamos la incertidumbre en un plan de acci\u00f3n<\/span>.<\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-6578014 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"6578014\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-03bfb36\" data-id=\"03bfb36\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-96f6fd2 elementor-widget__width-initial elementor-widget elementor-widget-heading\" data-id=\"96f6fd2\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Navegando la Enfermedad de Pompe en Latinoam\u00e9rica: Gu\u00eda Integral de Referencia<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ad7d8a2 elementor-widget elementor-widget-text-editor\" data-id=\"ad7d8a2\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h3><em style=\"color: inherit; font-family: inherit; font-size: 1.75rem;\">M\u00e1s que un manual m\u00e9dico, un mapa de ruta<\/em><\/h3>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4254f2f elementor-section-height-min-height elementor-section-stretched animated-slow elementor-reverse-mobile elementor-section-boxed elementor-section-height-default elementor-section-items-middle elementor-invisible\" data-id=\"4254f2f\" data-element_type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;,&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;fadeIn&quot;,&quot;animation_delay&quot;:300}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-custom\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-9c11dac\" data-id=\"9c11dac\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-cae47b5 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"cae47b5\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-b4d933a\" data-id=\"b4d933a\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a543cbb elementor-widget-tablet_extra__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"a543cbb\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span data-path-to-node=\"21,1\"><span class=\"citation-367\">Esta <\/span><b data-path-to-node=\"21,1\" data-index-in-node=\"5\"><span class=\"citation-367\">Gu\u00eda Integral de Referencia<\/span><\/b><span class=\"citation-367\">\u00a0ha sido co-creada para responder las preguntas que realmente importan un martes por la ma\u00f1ana o ante una emergencia m\u00e9dica<\/span><\/span><span data-path-to-node=\"21,3\">.<\/span><\/p><p><strong>\u00bfQu\u00e9 encontrar\u00e1s dentro?<\/strong><\/p><ul><li><strong>Biolog\u00eda y Gen\u00e9tica Explicada:<\/strong> Entiende qu\u00e9 ocurre en el lisosoma y c\u00f3mo leer tu reporte gen\u00e9tico sin tecnicismos confusos.<\/li><li><strong>Historias Reales:<\/strong> Conoce los fenotipos a trav\u00e9s de \u00abMateo\u00bb (Inicio Infantil\/IOPD) y \u00abSof\u00eda\u00bb (Inicio Tard\u00edo\/LOPD) para identificar s\u00edntomas y estrategias de manejo.<\/li><li><strong>Manejo Multidisciplinario:<\/strong> Estrategias pr\u00e1cticas de nutrici\u00f3n, respiraci\u00f3n (BiPAP, respiradores mec\u00e1nicos) y rehabilitaci\u00f3n f\u00edsica para preservar la energ\u00eda.<\/li><li><strong>Salud Mental y Cuidadores:<\/strong> Herramientas para combatir el \u00abs\u00edndrome del cuidador quemado\u00bb y gestionar el impacto emocional del diagn\u00f3stico.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-240002b\" data-id=\"240002b\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6c97552 e-transform elementor-widget elementor-widget-image\" data-id=\"6c97552\" data-element_type=\"widget\" data-settings=\"{&quot;_transform_scale_effect_hover&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1.1,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_laptop&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_tablet_extra&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_tablet&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_mobile_extra&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_mobile&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]}}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"793\" height=\"1024\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Guia-Integral-de-Referencia-para-la-Enfermedad-de-Pompe-RARUS-HEALTH-2025\u00a9-793x1024.webp\" class=\"attachment-large size-large wp-image-3718\" alt=\"Portada ilustrada de la gu\u00eda titulada &#039;Navegando la Enfermedad de Pompe en Latinoam\u00e9rica: Gu\u00eda Integral de Referencia&#039;. La imagen central muestra una ilustraci\u00f3n estilo acuarela de tres mujeres diversas de pie dentro de un gran barco de papel navegando sobre el agua bajo un cielo azul. A la izquierda, una mujer sostiene a un beb\u00e9 en brazos; en el centro, una doctora con bata blanca consulta un dispositivo m\u00f3vil; y a la derecha, una mujer joven se\u00f1ala hacia el horizonte. En el pie de p\u00e1gina se lee &#039;RARUS HEALTH 2025\u00a9\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Guia-Integral-de-Referencia-para-la-Enfermedad-de-Pompe-RARUS-HEALTH-2025\u00a9-793x1024.webp 793w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Guia-Integral-de-Referencia-para-la-Enfermedad-de-Pompe-RARUS-HEALTH-2025\u00a9-232x300.webp 232w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Guia-Integral-de-Referencia-para-la-Enfermedad-de-Pompe-RARUS-HEALTH-2025\u00a9-768x992.webp 768w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Guia-Integral-de-Referencia-para-la-Enfermedad-de-Pompe-RARUS-HEALTH-2025\u00a9-1189x1536.webp 1189w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Guia-Integral-de-Referencia-para-la-Enfermedad-de-Pompe-RARUS-HEALTH-2025\u00a9-9x12.webp 9w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Guia-Integral-de-Referencia-para-la-Enfermedad-de-Pompe-RARUS-HEALTH-2025\u00a9-200x258.webp 200w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/Guia-Integral-de-Referencia-para-la-Enfermedad-de-Pompe-RARUS-HEALTH-2025\u00a9.webp 1548w\" sizes=\"(max-width: 793px) 100vw, 793px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-143efc0 elementor-section-height-min-height elementor-section-stretched animated-slow elementor-section-boxed elementor-section-height-default elementor-section-items-middle elementor-invisible\" data-id=\"143efc0\" data-element_type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;,&quot;background_background&quot;:&quot;classic&quot;,&quot;animation&quot;:&quot;fadeIn&quot;,&quot;animation_delay&quot;:300}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-5d1774d\" data-id=\"5d1774d\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-40a5634 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"40a5634\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-4170818\" data-id=\"4170818\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-830a0cd elementor-widget elementor-widget-heading\" data-id=\"830a0cd\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Validado por Expertos, Vivenciado por Pacientes<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9998533 elementor-widget-tablet_extra__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"9998533\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><span class=\"citation-362\">Este documento es el resultado de una colaboraci\u00f3n rigurosa entre cient\u00edficos, profesionales de la salud y l\u00edderes de pacientes<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-264c9ed e-transform elementor-widget elementor-widget-image\" data-id=\"264c9ed\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;none&quot;,&quot;_transform_scale_effect_hover&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1.1,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_laptop&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_tablet_extra&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_tablet&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_mobile_extra&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_mobile&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]}}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-1-1024x576.webp\" class=\"attachment-large size-large wp-image-3786\" alt=\"P\u00e1ginas iniciales que muestran la tabla de contenidos detallada a la izquierda y la introducci\u00f3n titulada &#039;Tu Br\u00fajula en el Viaje con Pompe&#039; a la derecha, acompa\u00f1ada de una fotograf\u00eda de la autora y CEO de Rarus Health, la Dra. Elmira Safarova.\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-1-1024x576.webp 1024w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-1-300x169.webp 300w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-1-768x432.webp 768w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-1-1536x864.webp 1536w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-1-18x10.webp 18w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-1-200x113.webp 200w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-1.webp 1920w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6a2647c e-transform elementor-widget elementor-widget-image\" data-id=\"6a2647c\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;none&quot;,&quot;_transform_scale_effect_hover&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1.1,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_laptop&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_tablet_extra&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_tablet&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_mobile_extra&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_mobile&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]}}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-2-1024x576.webp\" class=\"attachment-large size-large wp-image-3787\" alt=\"P\u00e1gina de muestra de la gu\u00eda para la enfermedad de pompe. Secci\u00f3n dedicada a la herencia y el diagn\u00f3stico durante el embarazo. Muestra una ilustraci\u00f3n de una mujer embarazada consultando a una doctora y explica m\u00e9todos de detecci\u00f3n como la biopsia de vellosidades cori\u00f3nicas y la amniocentesis.\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-2-1024x576.webp 1024w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-2-300x169.webp 300w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-2-768x432.webp 768w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-2-1536x864.webp 1536w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-2-18x10.webp 18w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-2-200x113.webp 200w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-2.webp 1920w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2fd6976 e-transform elementor-widget elementor-widget-image\" data-id=\"2fd6976\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;none&quot;,&quot;_transform_scale_effect_hover&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:1.1,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_laptop&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_tablet_extra&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_tablet&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_mobile_extra&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]},&quot;_transform_scale_effect_hover_mobile&quot;:{&quot;unit&quot;:&quot;px&quot;,&quot;size&quot;:&quot;&quot;,&quot;sizes&quot;:[]}}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-3-1024x576.webp\" class=\"attachment-large size-large wp-image-3788\" alt=\"P\u00e1gina de muestra de la gu\u00eda para la enfermedad de pompe. Doble p\u00e1gina comparativa de s\u00edntomas. La izquierda detalla la Enfermedad de Pompe de Inicio Infantil (IOPD) con la historia de &#039;Mateo&#039;; la derecha muestra un diagrama corporal de s\u00edntomas y presenta el Inicio Tard\u00edo (LOPD) con la historia de &#039;Sof\u00eda&#039;, ilustrando las diferencias entre ambos fenotipos.\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-3-1024x576.webp 1024w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-3-300x169.webp 300w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-3-768x432.webp 768w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-3-1536x864.webp 1536w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-3-18x10.webp 18w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-3-200x113.webp 200w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/muestra-guia-enfermedad-de-pompe-3.webp 1920w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-c466457\" data-id=\"c466457\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-22633d8 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"22633d8\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-011d876\" data-id=\"011d876\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4e3fbcd elementor-widget-tablet_extra__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"4e3fbcd\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"page\" title=\"Page 2\">\n<div class=\"section\">\n<div class=\"layoutArea\">\n<div class=\"column\">\n<p><strong>Direccio\u0301n<\/strong><br>Dra. Elmira Safarova \u2013 Chile<br>PhD en Biolog\u00eda Molecular y Farmacolog\u00eda<br>CEO &amp; Fundadora de Rarus Health<\/p>\n<p><strong>Investigacio\u0301n y Desarrollo de Contenidos<\/strong><br>Udhaya Srinivasan \u2013 Singapur<br>Ingeniera en Biomedicina<br>Analista de Datos 2025 de Rarus Health<\/p>\n<p><strong>Edicio\u0301n y Disen\u0303o<\/strong><br>Mariela Siri \u2013 Chile<br>Antrop\u00f3loga<br>L\u00edder de Marketing y Comunidades de Rarus Health<\/p>\n<p><strong>Colaboradores<\/strong><br>Brayhan Gonza\u0301lez \u2013 Colombia<br>Presidente y Fundador <span style=\"text-decoration: underline;\"><a href=\"https:\/\/www.clubpompe.org\/\" target=\"_blank\" rel=\"noopener\">Fundaci\u00f3n Pompe Club Internacional<\/a><\/span><\/p>\n<p>Fernando Rodri\u0301guez \u2013 Colombia<br>Vicepresidente y Fundador <span style=\"text-decoration: underline;\"><a href=\"https:\/\/www.clubpompe.org\/\" target=\"_blank\" rel=\"noopener\">Fundaci\u00f3n Pompe Club Internacional<\/a><\/span><\/p>\n<p><strong>Revisio\u0301n<br><\/strong>Heather Shorten \u2013 EE. UU. <br>M\u00e1ster en Trabajo Social (MSW) <br>Fundadora y Directora Ejecutiva de <span style=\"text-decoration: underline;\"><a href=\"https:\/\/www.pompealliance.com\/\" target=\"_blank\" rel=\"noopener\">Pompe Alliance<\/a><\/span><\/p>\n<p>Dra. Ana Carolina Me\u0301ndez Silva \u2013 M\u00e9xico<br>Me\u0301dico especialista en rehabilitacio\u0301n neurol\u00f3gica<\/p>\n<p>Dra. Tania G. Herna\u0301ndez \u2013 EE.UU.<br>M\u00e9dico Especialista en Medicina Familiar<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-2769858 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2769858\" data-element_type=\"section\" id=\"form-guia\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-extended\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-1aa37d7\" data-id=\"1aa37d7\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-618d5c2 elementor-widget__width-initial premium-cf7-button-align-left elementor-widget elementor-widget-premium-contact-form\" data-id=\"618d5c2\" data-element_type=\"widget\" data-widget_type=\"premium-contact-form.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\n\t\t\t\n\t\t\t\t<div class=\"premium-cf-head\">\n\n\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"premium-cf7-description\">\n\t\t\t\t\t\t\tCompleta tus datos para descargar la gu\u00eda\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\n\t\t\t\t<\/div>\n\n\t\t\t\n\t\t\t<div class=\"premium-cf7-container\" data-settings=\"{&quot;fields_glass&quot;:&quot;none&quot;,&quot;submit_glass&quot;:&quot;none&quot;}\">\n\t\t\t\t\n<div class=\"wpcf7 no-js\" id=\"wpcf7-f3726-o1\" lang=\"en-US\" dir=\"ltr\" data-wpcf7-id=\"3726\">\n<div class=\"screen-reader-response\"><p role=\"status\" aria-live=\"polite\" aria-atomic=\"true\"><\/p> <ul><\/ul><\/div>\n<form action=\"\/en\/wp-json\/wp\/v2\/pages\/3715#wpcf7-f3726-o1\" method=\"post\" class=\"wpcf7-form init\" aria-label=\"Contact form\" novalidate=\"novalidate\" data-status=\"init\" data-trp-original-action=\"\/en\/wp-json\/wp\/v2\/pages\/3715#wpcf7-f3726-o1\">\n<fieldset class=\"hidden-fields-container\"><input type=\"hidden\" name=\"_wpcf7\" value=\"3726\" \/><input type=\"hidden\" name=\"_wpcf7_version\" value=\"6.1.4\" \/><input type=\"hidden\" name=\"_wpcf7_locale\" value=\"en_US\" \/><input type=\"hidden\" name=\"_wpcf7_unit_tag\" value=\"wpcf7-f3726-o1\" \/><input type=\"hidden\" name=\"_wpcf7_container_post\" value=\"0\" \/><input type=\"hidden\" name=\"_wpcf7_posted_data_hash\" value=\"\" \/><input type=\"hidden\" name=\"_wpcf7_recaptcha_response\" value=\"\" \/>\n<\/fieldset>\n<p><label> Full name<br \/>\n<span class=\"wpcf7-form-control-wrap\" data-name=\"your-name\"><input size=\"40\" maxlength=\"400\" class=\"wpcf7-form-control wpcf7-text wpcf7-validates-as-required\" autocomplete=\"name\" aria-required=\"true\" aria-invalid=\"false\" value=\"\" type=\"text\" name=\"your-name\" \/><\/span> <\/label>\n<\/p>\n<p><label> Correo Electr\u00f3nico<br \/>\n<span class=\"wpcf7-form-control-wrap\" data-name=\"your-email\"><input size=\"40\" maxlength=\"400\" class=\"wpcf7-form-control wpcf7-email wpcf7-validates-as-required wpcf7-text wpcf7-validates-as-email\" autocomplete=\"email\" aria-required=\"true\" aria-invalid=\"false\" value=\"\" type=\"email\" name=\"your-email\" \/><\/span> <\/label>\n<\/p>\n<p><label> N\u00famero de WhatsApp (ej. +57 601 XXXXXXX)<br \/>\n<span class=\"wpcf7-form-control-wrap\" data-name=\"your-whatsapp\"><input size=\"40\" maxlength=\"400\" class=\"wpcf7-form-control wpcf7-tel wpcf7-validates-as-required wpcf7-text wpcf7-validates-as-tel\" autocomplete=\"tel\" aria-required=\"true\" aria-invalid=\"false\" value=\"\" type=\"tel\" name=\"your-whatsapp\" \/><\/span> <\/label>\n<\/p>\n<p><label> \u00bfCu\u00e1l es tu perfil?<br \/>\n<span class=\"wpcf7-form-control-wrap\" data-name=\"user-profile\"><select class=\"wpcf7-form-control wpcf7-select wpcf7-validates-as-required\" aria-required=\"true\" aria-invalid=\"false\" name=\"user-profile\"><option value=\"\">&#8212;Please choose an option&#8212;<\/option><option value=\"Paciente\">Paciente<\/option><option value=\"Cuidador\">Cuidador<\/option><option value=\"Profesional de la Salud\">Profesional de la Salud<\/option><option value=\"Otro\">Otro<\/option><\/select><\/span> <\/label>\n<\/p>\n<p><label> Pa\u00eds de residencia<br \/>\n<span class=\"wpcf7-form-control-wrap\" data-name=\"user-country\"><select class=\"wpcf7-form-control wpcf7-select wpcf7-validates-as-required\" aria-required=\"true\" aria-invalid=\"false\" name=\"user-country\"><option value=\"\">&#8212;Please choose an option&#8212;<\/option><option value=\"Argentina\">Argentina<\/option><option value=\"Bolivia\">Bolivia<\/option><option value=\"Chile\">Chile<\/option><option value=\"Colombia\">Colombia<\/option><option value=\"Costa Rica\">Costa Rica<\/option><option value=\"Cuba\">Cuba<\/option><option value=\"Ecuador\">Ecuador<\/option><option value=\"El Salvador\">El Salvador<\/option><option value=\"Estados Unidos\">Estados Unidos<\/option><option value=\"Guatemala\">Guatemala<\/option><option value=\"Honduras\">Honduras<\/option><option value=\"M\u00e9xico\">M\u00e9xico<\/option><option value=\"Nicaragua\">Nicaragua<\/option><option value=\"Panam\u00e1\">Panam\u00e1<\/option><option value=\"Paraguay\">Paraguay<\/option><option value=\"Per\u00fa\">Per\u00fa<\/option><option value=\"Puerto Rico\">Puerto Rico<\/option><option value=\"Rep\u00fablica Dominicana\">Rep\u00fablica Dominicana<\/option><option value=\"Uruguay\">Uruguay<\/option><option value=\"Venezuela\">Venezuela<\/option><option value=\"Otro\">Otro<\/option><\/select><\/span> <\/label>\n<\/p>\n<p><label> Afiliaci\u00f3n a la Fundaci\u00f3n<br \/>\n<span class=\"wpcf7-form-control-wrap\" data-name=\"acceptance-pompe-member\"><span class=\"wpcf7-form-control wpcf7-acceptance optional\"><span class=\"wpcf7-list-item\"><label><input type=\"checkbox\" name=\"acceptance-pompe-member\" value=\"1\" aria-invalid=\"false\" \/><span class=\"wpcf7-list-item-label\">Soy miembro o colaborador de Fundaci\u00f3n Pompe Club Internacional.<\/span><\/label><\/span><\/span><\/span> <\/label>\n<\/p>\n<p><label> Privacidad<br \/>\n<span class=\"wpcf7-form-control-wrap\" data-name=\"acceptance-privacy\"><span class=\"wpcf7-form-control wpcf7-acceptance\"><span class=\"wpcf7-list-item\"><label><input type=\"checkbox\" name=\"acceptance-privacy\" value=\"1\" aria-invalid=\"false\" \/><span class=\"wpcf7-list-item-label\">He le\u00eddo y acepto la <a href=\"https:\/\/privacy.rarus.health\/privacy-notice\" target=\"_blank\">pol\u00edtica de privacidad<\/a>.<\/span><\/label><\/span><\/span><\/span> <\/label>\n<\/p>\n<p><label> Consentimiento<br \/>\n<span class=\"wpcf7-form-control-wrap\" data-name=\"acceptance-marketing\"><span class=\"wpcf7-form-control wpcf7-acceptance optional\"><span class=\"wpcf7-list-item\"><label><input type=\"checkbox\" name=\"acceptance-marketing\" value=\"1\" aria-invalid=\"false\" \/><span class=\"wpcf7-list-item-label\">Acepto recibir comunicaciones, recursos educativos e informaci\u00f3n acerca de herramientas de gesti\u00f3n de salud de Rarus Health.<\/span><\/label><\/span><\/span><\/span> <\/label>\n<\/p>\n<input class=\"wpcf7-form-control wpcf7-hidden clientify_cookie\" value=\"\" type=\"hidden\" name=\"clientify_cookie\" \/>\n\n<p><input class=\"wpcf7-form-control wpcf7-submit has-spinner\" type=\"submit\" value=\"Obtener Gu\u00eda Gratuita\" \/>\n<\/p><div class=\"wpcf7-response-output\" aria-hidden=\"true\"><\/div>\n<input type=\"hidden\" name=\"trp-form-language\" value=\"en\"\/><\/form>\n<\/div>\n\t\t\t<\/div>\n\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-322a1e2 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"322a1e2\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-163a9c1\" data-id=\"163a9c1\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-b53fe01 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b53fe01\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-b14e6db\" data-id=\"b14e6db\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7f04c4f elementor-widget elementor-widget-heading\" data-id=\"7f04c4f\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">\u00bfLideras una comunidad de pacientes y buscas este nivel de impacto?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-30c539e elementor-widget elementor-widget-heading\" data-id=\"30c539e\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">No necesitas construir la tecnolog\u00eda desde cero. \u00danete a la infraestructura que ya funciona.<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f519c07 elementor-widget-tablet_extra__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"f519c07\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Lo que hemos logrado junto a la <b data-path-to-node=\"7\" data-index-in-node=\"50\">Fundaci\u00f3n Pompe Club Internacional<\/b> \u2014tarjetas de emergencia, gu\u00edas educativas validadas y una plataforma de registro de datos cl\u00ednicos\u2014 es replicable para tu organizaci\u00f3n.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-089a49c\" data-id=\"089a49c\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-545c00a elementor-widget elementor-widget-image\" data-id=\"545c00a\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"684\" src=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/benefits-for-people-with-disabilities-1-1024x684.webp\" class=\"attachment-large size-large wp-image-3772\" alt=\"Mujer joven con gafas y cabello oscuro sonriendo mientras utiliza una tableta electr\u00f3nica. Est\u00e1 sentada en una silla de ruedas en una habitaci\u00f3n luminosa y moderna con plantas de fondo, transmitiendo una imagen de autonom\u00eda y conectividad digital.\" srcset=\"https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/benefits-for-people-with-disabilities-1-1024x684.webp 1024w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/benefits-for-people-with-disabilities-1-300x200.webp 300w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/benefits-for-people-with-disabilities-1-768x513.webp 768w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/benefits-for-people-with-disabilities-1-1536x1026.webp 1536w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/benefits-for-people-with-disabilities-1-2048x1368.webp 2048w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/benefits-for-people-with-disabilities-1-18x12.webp 18w, https:\/\/rarus.health\/wp-content\/uploads\/2026\/01\/benefits-for-people-with-disabilities-1-200x134.webp 200w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-86d318c elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"86d318c\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-61fa858\" data-id=\"61fa858\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-945475b elementor-widget-tablet_extra__width-initial elementor-widget elementor-widget-text-editor\" data-id=\"945475b\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p data-path-to-node=\"8\">En <b data-path-to-node=\"8\" data-index-in-node=\"3\">Rarus Health<\/b>, nos asociamos con l\u00edderes de organizaciones pacientes para:<\/p><ol start=\"1\" data-path-to-node=\"9\"><li><p data-path-to-node=\"9,0,0\"><b data-path-to-node=\"9,0,0\" data-index-in-node=\"0\">Digitalizar tu comunidad:<\/b> Olvida las planillas de Excel y ofrece una App segura a tus miembros.<\/p><\/li><li><p data-path-to-node=\"9,1,0\"><b data-path-to-node=\"9,1,0\" data-index-in-node=\"0\">Generar Evidencia Real:<\/b> Transforma las an\u00e9cdotas de tus pacientes en datos listos para la investigaci\u00f3n y la defensa de derechos.<\/p><\/li><li><p data-path-to-node=\"9,2,0\"><b data-path-to-node=\"9,2,0\" data-index-in-node=\"0\">Profesionalizar el Cuidado:<\/b> Brinda herramientas tangibles (como la Tarjeta de Emergencia) que mejoran la calidad de vida desde el d\u00eda 1.<\/p><\/li><\/ol>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-7bfb425 elementor-section-content-middle elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"7bfb425\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-a3ff4f6\" data-id=\"a3ff4f6\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-76b32b5 elementor-mobile-align-center elementor-align-center elementor-widget-tablet_extra__width-initial elementor-widget__width-initial elementor-widget elementor-widget-button\" data-id=\"76b32b5\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-lg\" href=\"mailto:info@rarus.health?subject=Inter\u00e9s%20en%20Alianza%20para%20mi%20Comunidad\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Colaboremos para potenciar tu fundaci\u00f3n<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-714c495 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"714c495\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-392aa48\" data-id=\"392aa48\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>Tu Br\u00fajula en el Viaje con Pompe: Ciencia, Comunidad e Infraestructura Unimos la tecnolog\u00eda de Rarus Health con la experiencia vivida de la Fundaci\u00f3n Pompe Club Internacional para romper el aislamiento y ofrecerte herramientas reales de cuidado Descarga la Gu\u00eda de Referencia Para la Enfermedad de Pompe aqu\u00ed Infraestructura para la Comunidad Impulsada por la [&hellip;]<\/p>","protected":false},"author":8,"featured_media":3718,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"full-width.php","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-3715","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/rarus.health\/en\/wp-json\/wp\/v2\/pages\/3715","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rarus.health\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/rarus.health\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/rarus.health\/en\/wp-json\/wp\/v2\/users\/8"}],"replies":[{"embeddable":true,"href":"https:\/\/rarus.health\/en\/wp-json\/wp\/v2\/comments?post=3715"}],"version-history":[{"count":66,"href":"https:\/\/rarus.health\/en\/wp-json\/wp\/v2\/pages\/3715\/revisions"}],"predecessor-version":[{"id":3809,"href":"https:\/\/rarus.health\/en\/wp-json\/wp\/v2\/pages\/3715\/revisions\/3809"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/rarus.health\/en\/wp-json\/wp\/v2\/media\/3718"}],"wp:attachment":[{"href":"https:\/\/rarus.health\/en\/wp-json\/wp\/v2\/media?parent=3715"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}